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	<title>Comments for Einstein Syndrome:  Down Syndrome with a Positive Attitude</title>
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	<description>Down Syndrome with a Positive Attitude</description>
	<pubDate>Sun, 06 Jul 2008 05:11:37 +0000</pubDate>
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		<title>Comment on Constipation in Down syndrome by Miriam</title>
		<link>http://einsteinsyndrome.wordpress.com/health_medical/constipation/#comment-217</link>
		<dc:creator>Miriam</dc:creator>
		<pubDate>Mon, 30 Jun 2008 17:11:53 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=121#comment-217</guid>
		<description>This is from Christine E on the ES list:

Ok - My 3.5 year old typical son still poops in the pool and he is potty trained.  I asked his doctor and he said that it is a very relaxing environement - especially for boys.  He also said that he is probably having so much fun that he just doesn't want to get out - - very true.  

What we have been doing to avoid having the accident in the pool is letting him get in and swim for 5-10 minutes then have him go try to use the potty.  He usually does have a bm at that time.  If he doesn't, I tell him if he does have an accident in the pool we will have to get out.  That didn't work in the beginning - so we stuck to it and pool time was over.  He has gotten better about realizing he has to go if in the pool since we started this process.  We also had issues with him in the shower / bath.  

[My two year old daughter with DS]  doesn't have too much of an issue in the pool, but we do have bm issues in the bath / shower so we've implemented the same process - in, out to  try to use the potty (and she usually does) then back in.  She still has accidents in the bath / shower but not as frequent.  Don't know if that is much help, but it has worked for us.</description>
		<content:encoded><![CDATA[<p>This is from Christine E on the ES list:</p>
<p>Ok - My 3.5 year old typical son still poops in the pool and he is potty trained.  I asked his doctor and he said that it is a very relaxing environement - especially for boys.  He also said that he is probably having so much fun that he just doesn&#8217;t want to get out - - very true.  </p>
<p>What we have been doing to avoid having the accident in the pool is letting him get in and swim for 5-10 minutes then have him go try to use the potty.  He usually does have a bm at that time.  If he doesn&#8217;t, I tell him if he does have an accident in the pool we will have to get out.  That didn&#8217;t work in the beginning - so we stuck to it and pool time was over.  He has gotten better about realizing he has to go if in the pool since we started this process.  We also had issues with him in the shower / bath.  </p>
<p>[My two year old daughter with DS]  doesn&#8217;t have too much of an issue in the pool, but we do have bm issues in the bath / shower so we&#8217;ve implemented the same process - in, out to  try to use the potty (and she usually does) then back in.  She still has accidents in the bath / shower but not as frequent.  Don&#8217;t know if that is much help, but it has worked for us.</p>
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		<title>Comment on Constipation in Down syndrome by Miriam</title>
		<link>http://einsteinsyndrome.wordpress.com/health_medical/constipation/#comment-216</link>
		<dc:creator>Miriam</dc:creator>
		<pubDate>Mon, 30 Jun 2008 17:07:36 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=121#comment-216</guid>
		<description>This is from Priscilla, posting on the ES email list:

I don't know much about it being serotonin but I do have a suggestion and opinion.  In my mind it's probably mainly just a matter of the low tone, slow moving gut, and the water acts as an enema stimulating the slow moving backed up poop to come out.

For Evan, who because of spina bifida also, has bowel problems, we do an enema before being in a pool or before going anywhere  we don't want him to go.  Actually, we are trying to do enemas daily now and I don't know why I didn't do it ages ago.  It's much easier than dealing with a mess and enemas are known to be healthy, safe and good for you so . . . until those kids are totally potty trained this is something you might consider doing especially for pools, and maybe even for school, etc.  We just use water and soap --I buy those little disposable plastic enema bottles that you can buy at any pharmacy and I reuse them over and over refilling with water and sometimes a little soap.  Works great and Evan's urologist recommends this.  I researched enemas online and saw nothing bad about them --they do recommend squeezing that bottle of water slowly in so as not to force things and possibly damage.</description>
		<content:encoded><![CDATA[<p>This is from Priscilla, posting on the ES email list:</p>
<p>I don&#8217;t know much about it being serotonin but I do have a suggestion and opinion.  In my mind it&#8217;s probably mainly just a matter of the low tone, slow moving gut, and the water acts as an enema stimulating the slow moving backed up poop to come out.</p>
<p>For Evan, who because of spina bifida also, has bowel problems, we do an enema before being in a pool or before going anywhere  we don&#8217;t want him to go.  Actually, we are trying to do enemas daily now and I don&#8217;t know why I didn&#8217;t do it ages ago.  It&#8217;s much easier than dealing with a mess and enemas are known to be healthy, safe and good for you so . . . until those kids are totally potty trained this is something you might consider doing especially for pools, and maybe even for school, etc.  We just use water and soap &#8211;I buy those little disposable plastic enema bottles that you can buy at any pharmacy and I reuse them over and over refilling with water and sometimes a little soap.  Works great and Evan&#8217;s urologist recommends this.  I researched enemas online and saw nothing bad about them &#8211;they do recommend squeezing that bottle of water slowly in so as not to force things and possibly damage.</p>
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		<title>Comment on Constipation in Down syndrome by Marilyn</title>
		<link>http://einsteinsyndrome.wordpress.com/health_medical/constipation/#comment-214</link>
		<dc:creator>Marilyn</dc:creator>
		<pubDate>Mon, 30 Jun 2008 12:12:16 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=121#comment-214</guid>
		<description>My son was doing this because he drank so much of the pool water.  He has gotten better, but i have taken to having him use the bathroom at 30 minute intervals to avoid accidents.  At one hour he is required to sit out for a while so as not to throw up.  I find it stressful as we don't want to be the cause of the pool shutting down for so many people.  How embarassing!!!!</description>
		<content:encoded><![CDATA[<p>My son was doing this because he drank so much of the pool water.  He has gotten better, but i have taken to having him use the bathroom at 30 minute intervals to avoid accidents.  At one hour he is required to sit out for a while so as not to throw up.  I find it stressful as we don&#8217;t want to be the cause of the pool shutting down for so many people.  How embarassing!!!!</p>
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		<title>Comment on Constipation in Down syndrome by Marsha</title>
		<link>http://einsteinsyndrome.wordpress.com/health_medical/constipation/#comment-213</link>
		<dc:creator>Marsha</dc:creator>
		<pubDate>Sun, 29 Jun 2008 23:33:26 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=121#comment-213</guid>
		<description>My son used to poop in the pool, also.  I do not believe that it  is a seratonin issue.   It is just something you will have to work through. It is difficult, I know.  We always make my son go to the bathroom before entering a pool.   No problem anymore.</description>
		<content:encoded><![CDATA[<p>My son used to poop in the pool, also.  I do not believe that it  is a seratonin issue.   It is just something you will have to work through. It is difficult, I know.  We always make my son go to the bathroom before entering a pool.   No problem anymore.</p>
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		<title>Comment on Constipation in Down syndrome by Tina</title>
		<link>http://einsteinsyndrome.wordpress.com/health_medical/constipation/#comment-212</link>
		<dc:creator>Tina</dc:creator>
		<pubDate>Sun, 29 Jun 2008 22:46:32 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=121#comment-212</guid>
		<description>My daughter use to do this.  I was told by her doctor this occurred because the muscles would relax and she would have a bm while in the pool.  The only thing we could do was take her out after 10 minutes, go to the bathroom and then come back out.  In time she realized what was happening and was able to tell us.  I'd never heard of it being a serotonin issue.</description>
		<content:encoded><![CDATA[<p>My daughter use to do this.  I was told by her doctor this occurred because the muscles would relax and she would have a bm while in the pool.  The only thing we could do was take her out after 10 minutes, go to the bathroom and then come back out.  In time she realized what was happening and was able to tell us.  I&#8217;d never heard of it being a serotonin issue.</p>
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		<title>Comment on Constipation in Down syndrome by kellie taylor</title>
		<link>http://einsteinsyndrome.wordpress.com/health_medical/constipation/#comment-211</link>
		<dc:creator>kellie taylor</dc:creator>
		<pubDate>Sun, 29 Jun 2008 20:35:29 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=121#comment-211</guid>
		<description>I have a 7and half boy with DS, we are still not fully potty trained. will teetee on potty during the day, my problem is with bm, he will not poop on potty, but loves to poop in the pool....yuk, he is only 40lbs and can easily wear a swim diaper to the pool but I'm sooo tired of it.... could this be a serotonin thing???</description>
		<content:encoded><![CDATA[<p>I have a 7and half boy with DS, we are still not fully potty trained. will teetee on potty during the day, my problem is with bm, he will not poop on potty, but loves to poop in the pool&#8230;.yuk, he is only 40lbs and can easily wear a swim diaper to the pool but I&#8217;m sooo tired of it&#8230;. could this be a serotonin thing???</p>
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		<title>Comment on Martha&#8217;s Story by Lena</title>
		<link>http://einsteinsyndrome.wordpress.com/inspiration/martha/#comment-207</link>
		<dc:creator>Lena</dc:creator>
		<pubDate>Fri, 27 Jun 2008 02:07:24 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=84#comment-207</guid>
		<description>We have a little boy (Jacob) with Downs who is 2 1/2. He is the youngest of 5 children. He is the light of our lives. Everyday is a new experience that I would not trade for anything. He is such an encouragement to us all. It is so sad to think that the doctor we originally seen had no hope for this little man. We were told he would never do anything and yet he has far exceeded all that we could ever think or imagine. What a true blessing to our whole family.</description>
		<content:encoded><![CDATA[<p>We have a little boy (Jacob) with Downs who is 2 1/2. He is the youngest of 5 children. He is the light of our lives. Everyday is a new experience that I would not trade for anything. He is such an encouragement to us all. It is so sad to think that the doctor we originally seen had no hope for this little man. We were told he would never do anything and yet he has far exceeded all that we could ever think or imagine. What a true blessing to our whole family.</p>
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		<title>Comment on God, Do You Care? by Denise McKnight</title>
		<link>http://einsteinsyndrome.wordpress.com/inspiration/god_cares/#comment-196</link>
		<dc:creator>Denise McKnight</dc:creator>
		<pubDate>Thu, 19 Jun 2008 03:01:14 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?page_id=80#comment-196</guid>
		<description>Dear Rose, I taught kindergarten in a Christian school for (14) yrs. During that time I worked with autistic children. I  wanted them in my class room when other people didn`t.  There were other children with disabilities and I worked with them as well. I had not worked with a downs child until I transfered into  a public school in my area. My first (job) I call it my calling from God, was a little downs girl in first grade. Carson was the delight of my life. I could not love her any less than I did my own children.I told Carson`s parents that I thought I loved her more than I did my own. We had such a wonderful time together. I worked with her for 2 and a half years, and enjoyed every day that we had together. Her classmates adored her, and were always ready to help  her in anyway they could.I know that we all want to have normal children, but what is normal anyway? We are all different, God planned it that way. God knows best, and he knows what is best for us. I am so thankful that God allowed me to go to a school where I can work with children with special needs. I need to be needed, my children are grown. These precious children fill that need for me, and I in turn help them with their`s. Either way it spells LOVE, and that`s what makes the world go round. We are made in His-God`s likness and image the Bible says. God says that we are fearfully and wonderfully made and that my soul knoweth . Don`t dispare  over you little one Rose, God has a plan for her. Trust in Him and his wisdom, and read His word.              God Bless You, Denise Mcknight</description>
		<content:encoded><![CDATA[<p>Dear Rose, I taught kindergarten in a Christian school for (14) yrs. During that time I worked with autistic children. I  wanted them in my class room when other people didn`t.  There were other children with disabilities and I worked with them as well. I had not worked with a downs child until I transfered into  a public school in my area. My first (job) I call it my calling from God, was a little downs girl in first grade. Carson was the delight of my life. I could not love her any less than I did my own children.I told Carson`s parents that I thought I loved her more than I did my own. We had such a wonderful time together. I worked with her for 2 and a half years, and enjoyed every day that we had together. Her classmates adored her, and were always ready to help  her in anyway they could.I know that we all want to have normal children, but what is normal anyway? We are all different, God planned it that way. God knows best, and he knows what is best for us. I am so thankful that God allowed me to go to a school where I can work with children with special needs. I need to be needed, my children are grown. These precious children fill that need for me, and I in turn help them with their`s. Either way it spells LOVE, and that`s what makes the world go round. We are made in His-God`s likness and image the Bible says. God says that we are fearfully and wonderfully made and that my soul knoweth . Don`t dispare  over you little one Rose, God has a plan for her. Trust in Him and his wisdom, and read His word.              God Bless You, Denise Mcknight</p>
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		<title>Comment on How Not to Be a Therapy Mom by Miriam</title>
		<link>http://einsteinsyndrome.wordpress.com/2008/05/03/how-not-to-be-a-therapy-mom/#comment-195</link>
		<dc:creator>Miriam</dc:creator>
		<pubDate>Tue, 17 Jun 2008 01:50:06 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?p=144#comment-195</guid>
		<description>Tina, 

I have to assume that you have read nothing else on this site, or you would not have written that.  I refer you to the links in the sidebars and in the header.  

Sigh.

So let me say this here, to all the moms of 2 1/2 year old sons.  Therapy is great.  Nutrition is great.  Go for it and reach for the sky!  

But there is more to life and motherhood than therapy.  Your child is a person first, and an object of therapy last.  You are a mother first.  You have a family, a whole family which exists for far more than therapy.  When therapy takes over your life, when you are overwhelmed with guilt for not "getting it all done", then you need to stop being a therapy mom and focus instead on being a mother who has a heart-to-heart connection with her child.</description>
		<content:encoded><![CDATA[<p>Tina, </p>
<p>I have to assume that you have read nothing else on this site, or you would not have written that.  I refer you to the links in the sidebars and in the header.  </p>
<p>Sigh.</p>
<p>So let me say this here, to all the moms of 2 1/2 year old sons.  Therapy is great.  Nutrition is great.  Go for it and reach for the sky!  </p>
<p>But there is more to life and motherhood than therapy.  Your child is a person first, and an object of therapy last.  You are a mother first.  You have a family, a whole family which exists for far more than therapy.  When therapy takes over your life, when you are overwhelmed with guilt for not &#8220;getting it all done&#8221;, then you need to stop being a therapy mom and focus instead on being a mother who has a heart-to-heart connection with her child.</p>
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		<title>Comment on What Alternative Therapies Are Working for You? by Christina</title>
		<link>http://einsteinsyndrome.wordpress.com/2008/04/01/what-alternative-therapies-are-working-for-you/#comment-194</link>
		<dc:creator>Christina</dc:creator>
		<pubDate>Mon, 16 Jun 2008 20:15:15 +0000</pubDate>
		<guid isPermaLink="false">http://einsteinsyndrome.wordpress.com/?p=129#comment-194</guid>
		<description>I hope you will continue seeking research, i have lots of info i've pulled up over the last 21/2 years. i just now found this site. please let me know.
CM</description>
		<content:encoded><![CDATA[<p>I hope you will continue seeking research, i have lots of info i&#8217;ve pulled up over the last 21/2 years. i just now found this site. please let me know.<br />
CM</p>
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